A MESSAGE FROM Emily's CF Fundraising Page NYC Marathon 24'
Please support my fundraising efforts for the 2024 TCS New York City Marathon Fundraising. No donation is too small. Please click on the donate button!
My love for running started in high school when I joined the cross country team. I have continued to run throughout the years but this year I am running for something so special to my heart. When Kora, my youngest daughter, was 6 weeks old, we received the gut wrenching news that she had Cystic Fibrosis. Cystic Fibrosis, also known as CF, is a genetic disorder that affects excretory cells that produce mucus, sweat and digestive juices. CF causes thick mucus in the lungs which can result in damage over the years. The digestive system can also be affected in severe ways. Thankfully, my Kora has been overall healthy in her 4 years of life. I owe a lot of her health to God, her amazing healthcare team, treatment plan, and medical treatment advances over the years. We were told had she been born when CF was first discovered, we could have been talking hospice instead of treatment options. I attribute a lot of the medication and treatment options to significant research that has been performed. The Cystic Fibrosis Foundation was formed by parents of children with CF that wanted to make a difference for future generations. The CF Foundation has funded billions of dollars for the research performed and I believe they are the reason we have the best medication available to people with CF. Kora has been on modulator therapy since she was about 2 years old and I truly believe the CF foundation is one of the reasons she is so healthy and has a chance to live a long full healthy life. Please support my page if you feel led to do so. It will be going towards giving people like my sweet Kora life. God has given me the ability to run and I want to give everything I have to run this race for my angel Kora. "Let everything that has breath praise the Lord." Psalm 150:6
