A MESSAGE FROM Allison Smith's NYC Marathon Fundraising Page
As a runner, I’ve been supporting the Brave Like Gabe Foundation since 2018 when I ran the Inaugural Silo Marathon put on by Chip Gaines after he met Gabe in Central Park and decided to not only train for his 1st marathon, but host a race in Waco Texas to support Gabe's foundation. I went on to run it virtually in 2020 due to Covid, and again in 2022, Magnolia Silo's last time to host the race. I have also participated in the annual Brave Like Gabe virtual 5K's. Not only do I love Gabe’s story of running on hope during her cancer journey, one that cut her life short at the age of 32, but I too have been deeply affected by rare cancer.
My Grandpa died in 2003, just 6 months after my wedding, following a short battle with liver bile duct cancer. Thankfully he was able to be there at my wedding and I was able to share one last dance with him which was really special. And then years later, my husband’s dad died at the age of 63 due to the super rare cancer, EHE that literally affects 1 in a million people. Our girls were only 6 and 4 when he passed, but he was such an amazing grandpa and he would have absolutely loved this season of life we are in. We miss him so much. We’ve also lost a beloved pastor to ocular melanoma which is super rare, and we’ve known other family and friends who have gone through cancer journeys and lost loved ones too soon. And as a family nurse practitioner, I will never forget losing my first pediatric patient to brain cancer. Those are the ones that really hurt.
This is why I am choosing to run the NYC Marathon with hope, and I'm partnering with the Brave Like Gabe Foundation to make a difference. This will be my 8th full marathon, and I know that this race and this experience will be life-changing.
We are running to support rare cancer research.
Gabe had Adenoid Cystic Carcinoma, or ACC, which is a cancer of secretory glands. It is an equal-opportunity disease that might strike anyone. It is not inherited, or associated with smoking, drinking, infection or ethnicity, however women comprise about 60% of ACC cases. With an average of 1224 people diagnosed annually in the United States, ACC is considered a rare cancer. 1224 is a big or small number depending on your perspective, but of course each of those diagnoses represents a brave, hopeful life.
Because there are fewer rare cancer patients than say, breast or colon cancer patients, these rare diseases are harder to study. It is more difficult to get tissue and tumor samples for scientists to examine, and it can be challenging to test potential therapies. Another critical limiting factor is funding for this research. As the private sector has largely overlooked these rare diseases the funding often comes from non profits, like Brave Like Gabe and donors like you!
Your donation to my fundraiser supports Brave Like Gabe and critical rare cancer research at places like the University of Minnesota, Memorial Sloan Kettering, and the Fred Hutchinson Cancer Research Center.
“My goal is to raise awareness for these diseases, the research funding disparities, and other challenges that prevent these cancers from having effective treatment options. Through Brave Like Gabe fundraising efforts, we will support research and accelerate treatments for rare cancer patients.” - Gabe
“I remember feeling devastated when I realized how little research had been done on my cancer and the fact that there were not any FDA-approved treatments for my disease—I don’t want any patient to feel that way; that they’re alone in their fight or that the medical research community doesn’t care about their cancer.” - Gabe
Thank you so much for your support!
Allison Smith
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