A MESSAGE FROM Micah's Fundraising Page
On November 3rd I will be running the TCS New York City Marathon to support the Dravet Syndrome Foundation - an organization that is near and dear to my heart. As many of you know, my daughter, Norah, was diagnosed with Dravet Syndrome when she was 11 months old. While Norah is a happy, delightful 14-year-old now, her life has also been severely impacted by her diagnosis. The work being done by the Dravet Syndrome Foundation is not only helping kids like Norah and their families today, it also brings hope that the next generation of kids born with Dravet Syndrome may not have to experience its debilitating symptoms at all.