Information about my cousin Connor and Duchenne Muscular Dystrophy (DMD) and my Cousin Connor below: 

Connor's body is missing the critical protein dystrophin due to having Duchenne Muscular Dystrophy (DMD). Dystrophin is crucial for the functioning of all muscle cells, including the heart, and the muscles supporting the lungs. DMD is progressive, which means it will worsen over time. DMD is also 100% fatal (life expectancy is between 18-25 years of age). Young men with DMD have been living longer in this generation because of all of the aggressive treatments and medications that have become more common in recent years. We are hopeful Connor will benefit from the care and treatments that we have coordinated with him since we learned of his diagnosis in May 2008. Connor takes steroids (emflaza - deflazacort) daily to help slow the progression of the disease. Connor also takes Fosamax for osteoporosis he has caused by daily high dose steroids. Connor is on two heart medicines that can make him tired, in addition to taking many vitamins, anti-oxidants and supplements for Calcium, Vitamin D3, CoQ10. We have seen our fundraising money at work and there are many drugs in the pipeline that will hopefully help DMD boys now in their lifetime.