Amanda's Fundraising Page
$2,750.00 raised
$1,000.00 goal
A MESSAGE FROM Amanda
Dear Friends and Colleagues, June is Myasthenia Gravis Awareness Month. I'm joining up with the McCourt foundation and team MGH Neurology to run the Boston waterfront 5K. We're raising funds to support the MG research program at Mass General Hospital. Specifically, we are aiming to further develop an enduring research infrastructure for MG, seamlessly integrated with clinical care, and managed by a new research access nurse, to expand the impact of our work. MG is a rare autoimmune neuromuscular disease which affects about 20/100,000 people of all ages and causes skeletal muscle weakness. Most people have never heard of MG when they are diagnosed. Average time from symptom onset to diagnosis unfortunately is still 2 years! Newer therapies hold great potential to minimize the burden from MG if they are accessible and can be given at the right time to patients whose MG will benefit most. In addition to clinical trials, our research at MGH is focused on care for patients with thymoma, MG after immunotherapy for cancer, and novel outcome measures to better monitor and manage MG remotely. If you are able to contribute, please consider making a donation. I am striving to raise a minimum total of $1,000 and a goal total of $3,000. Funds raised by runners come directly to our programs from the McCourt Foundation - a longtime partner of MGH neurology. Any contribution, no matter the size, will be sure to make a difference in the lives of those living with myasthenia. Thank you in advance for your consideration and your support! Best, Amanda
  • Katey Burke made a $50.00 donation
    $50.00
  • Hana and Chris Ng made a $30.00 donation
    $30.00
  • Michael Staples made a $100.00 donation

    The very best of luck Amanda with the race, the fundraising and the work. All the very best from Mike and Sabine.

    $100.00
  • Gretchen Ayer made a $50.00 donation
    $50.00
  • Aarti Sekhar made a $100.00 donation

    Keep up the incredible work Amanda!!

    $100.00
  • Helene Laffaille made a $20.00 donation
    $20.00
  • Leeann Burton made a $50.00 donation
    $50.00
  • Ashkan Vaziri made a $1,000.00 donation
    $1,000.00
  • Reza made a $50.00 donation
    $50.00
  • Brian Daly made a $100.00 donation

    Happy to help. Hope to see you soon!

    $100.00
  • Paul Puri made a $100.00 donation
    $100.00
  • Anonymous made a $300.00 donation
    $300.00
  • Bruce Coleman made a $300.00 donation

    The clinical and research work you and your team are doing is invaluable to treat and improve the quality of life for MG patients. We proudly support your efforts. Judy and Bruce Coleman

    $300.00
  • Anonymous made a $50.00 donation
    $50.00
  • Hannah Machemehl made a $50.00 donation

    great runner!! great cause!!

    $50.00
  • Parrello Valdez made a $50.00 donation

    Cheering you on Amanda!

    $50.00
  • Janice Terkell made a $50.00 donation

    Good Luck Amanda !

    $50.00
  • Rania Ghosn made a $25.00 donation
    $25.00
  • Anonymous made a $25.00 donation
    $25.00
  • Kelly Bacon made a $50.00 donation
    $50.00
  • Anonymous made a $50.00 donation
    $50.00
  • Anonymous made a $100.00 donation

    Thrilled to support the MGH myasthenia program!

    $100.00
  • Amanda Guidon made a $50.00 donation
    $50.00

Team MGH Neurology
$4,265.00 raised
$5,000.00 goal
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