Running for Rare® Team

Through Running for Rare, NORD’s signature charity running program, runners join together with community partners to raise awareness for rare diseases while fundraising to contribute to NORD programs for undiagnosed patients. This special team is made up of passionate and committed individuals seeking to make a meaningful difference for the rare disease community. The funds raised by runners will help NORD support undiagnosed patients through a variety of programs and services aimed at shortening the diagnostic odyssey. 

The Rare Community Partner program is what makes this team so unique. Each runner is paired with a partner (patient, advocate, or other) and builds a relationship with him or her throughout their training leading up to race day. This is the foundation for inspiration as each runner trains throughout the year to run, walk, swim, or bike their way to the finish line. This program also gives each partner a platform to tell their story, raise awareness, find support and connect with those going through similar challenges.

The team is looking for patients and families who are interested in working together to make a difference on behalf of the over 7,000 rare diseases and the 25-30 million Americans impacted by them.